I have been travelling along this journey for so so long.
It still feels unfair and sometimes I want to scream but I triumph by still finding joy in life and the things I can do.
I refuse to try any more unproven treatents as I feel this allows some of the medical profession to continue to treat us with contempt in offering us exercise as the only treatment.
What a load of crap. Like sending someone with a migraine to a disco.