Stories of Cleidocranial Dysplasia

CLEIDOCRANIAL DYSPLASIA STORIES

VIEWS

BY

I was diagnosed before I was born. My mother and my grandmother both have Cleidocranial Dyplasia. I have only met one other person outside of my family that had Cleidocranial dysphasia. I am 22 years old and haven't had a single needed surgery becaus...

812

5/16/17, 6:06 PM by Zoe

CLEIDOCRANIAL DYSPLASIA

I was born with cleidocranial dysplasia. It is a congenital disorder primarily affecting the bones and teeth. I had multiple mouth surgeries through childhood. It's been said I had the sharks equivalent of teeth. I am 30 and due to funds I am still n...

759

5/16/17, 4:42 PM by Stephanie

MY LIFE

IN MY SCHOOL MAKE ME BULLYNG AND I GIVE PENALTY

716

5/28/17, 8:09 PM by Jennyfer

MIRA'S STORY

I am a spontaneous occurrence.

690

5/16/17, 6:40 PM by Mira

PAIGE'S STORY

I was born and raised in Colorado. I got diagnosed with CCD at a very young age. I don't have collar bones at all, had 3 different surgeries for my baby teeth to be removed and my adult teeth to come in. I had braces for 5-6 years to aid the process....

684

5/16/17, 4:23 PM by Paige

Is Cleidocranial Dysplasia contagious?