- Congenital Sucrase Isomaltase Deficiency
- Interviews
Simone's interview
How did all start?
As a baby
Do you already have a diagnosis? How long did it take you to get it?
Yes, age 3.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Strick diet and Invertase/Sucraid
What has been the most useful thing for you so far?
Food categorising i.e.
1) Foods I can definately eat.
2) Foods I can have a little bit of.
3) No go foods.
What have been your biggest difficulties?
Self-Control. I often find myself feeling really ill and regretting my food choices because I have wanted a 'treat'.
How has your social and family environment reacted? Have your social or family relationships changed?
My family are supportive but ultimately it is down to me. I have far more knowledge of my condition and what my body can and can't tolerate than anyone else.
What things have you stopped doing?
Apologising for not being able to eat things!
What do you think about the future?
It's always going to be a bit of a pain having a sucrose intolerance but I am still discovering things all the time that I can eat. Optimism is key.
So far, which years have been the best years in your life? What have you done during them?
The time is now.... I have had fantastic years, I have had bad years. I'm having a great year and I will have good and bad years to come.
What would you like to do if you didn’t have your condition?
Eat desert for breakfast.
If you had to describe your life in a sentence, what would it be?
Amazing!
Finally, what advice would you give to a person in a similar situation?
Stay positive, it could be worse... it can always get better.
