Story about Congenital Sucrase Isomaltase Deficiency .

I have CSID.

Mar 8, 2019

By: Simone

Year Condition Began: 1992


Hi,

I have CSID, I have had it my whole life. I'm in my mid-twenties now.
Its a pain in the butt..but it could be worse.
Some days I am the best role model for managing life with a sucrose intolerance, other days I eat things I know I shouldn't because my 'will power' fails. Some days I eat things I think are 'safe' only to discover they are not, everyday is a learning day.

I hope by joining this site I am able to share what I have learnt in the hope it might be useful to someone. I also hope you might share what you have learnt with me- my tummy might appreciate it.

P.s. I love food.

Know someone who should read this story? Share it

1 comment
0

Hi, I was diagnosed with csid and lactose intolerance just two months ago so I really don't have advice to give as I am still struggling to find out what will work for me. Unfortunately, for me, Sucraid did not help me and I have modified my diet to not include sugar or dairy products. Still no results. Any advice is appreciated. Thank you.

Commented 2 years ago Suzy 10

Login or register to leave a comment


A Congenital Sucrase Isomaltase Deficiency interview

View interview


Congenital Sucrase Isomaltase Deficiency and depression

Congenital Sucrase Isomaltase Deficiency and depression

Do I have Congenital Sucrase Isomaltase Deficiency?

How do I know if I have Congenital Sucrase Isomaltase Deficiency?

History of Congenital Sucrase Isomaltase Deficiency

What is the history of Congenital Sucrase Isomaltase Deficiency?

Congenital Sucrase Isomaltase Deficiency symptoms

Which are the symptoms of Congenital Sucrase Isomaltase Deficiency?

Living with Congenital Sucrase Isomaltase Deficiency

Living with Congenital Sucrase Isomaltase Deficiency. How to live with...

Congenital Sucrase Isomaltase Deficiency diagnosis

How is Congenital Sucrase Isomaltase Deficiency diagnosed?

Congenital Sucrase Isomaltase Deficiency prognosis

Congenital Sucrase Isomaltase Deficiency prognosis

Latest progress of Congenital Sucrase Isomaltase Deficiency

What are the latest advances in Congenital Sucrase Isomaltase Deficien...