There are 126 people in the Cornelia de Lange Syndrome map
133 people with Cornelia de Lange Syndrome have joined the DiseaseMaps community map. They have shared 217 first-person answers and 9 stories about living with the condition.
I was a little different than anyone else. I had funny dwarf size/shaped features. Afted a bit of investigating, my mum was informed of my condition. With many appts at the local childrens hospital we learnt more about Cornelia de l...
1 people with Cornelia de Lange Syndrome have taken the SF36 survey. Mean of Cornelia de Lange Syndrome is 2445 points (68 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
