Diagnosed at birth
May 19, 2017
By: Amanda
Error
I was a little different than anyone else. I had funny dwarf size/shaped features. Afted a bit of investigating, my mum was informed of my condition. With many appts at the local childrens hospital we learnt more about Cornelia de langes syndrome. As i grew, my bones also grew abnormally. I needed heaps of surgeries to correct everything. After 3 lots of surgeries I told mum I'd had enough. Everyday is a struggle as I have weak bones everywhere. I am grateful for how everything has happened and the fact, I've lived a "normal" life doing things "normal" people would do.
0 comments
