My life with CRPS

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In January 2013 I suffered a crushing injury to my left foot. It didn't get better and in May I was diagnosed with CRPS 1. Since then I have been to multiple doctors and through multiple medications to try and control the pain. It has now spread to both feet, legs, hand and arms. Over the years I have been through regular PT, desensitization PT, GMI therapy and pain management therapy. All have helped to some degree but nothing has given me my life back. There are my good days, when the pain is 4 on the scale to the horrific off the chart days. I can no longer give a definite response to plans because it all depends on how I feel on any given day and I am no longer able to do the work I love. 

I have hope for the future with the FDA finally recognizing CRPS as a rare disease and I have the vital support of my family and friends. If I have one positive out of this it is that I have learned a great deal about myself and am proud of my ability to adapt. 

If I can help anyone get through a day or an hour I am here foy you.