U will have to excuse my language in my story as its my way .
I have suffered from this shitty disease for 19 years and still battling .
It was a road accident that gave me this shit and a kir of agro to .
I was diagnoised with after 2 years when i meet a specalist who knew straight what i had by just touching my hairs on my leg and hanging of a wall .
From then on it was a battle with docs to get them to understand .
Still now if i see other docs they say nothing they can do and cannot change meds etc
I do now know that there is nothing else for me except as a guinea pig for others .
I have falls as my affected side is my right hand side and so many scars on my face i look as if i have been fighting .
The thing i hate most is being called a fake , a bull shitter and there is no such thing i know others do to and when people say that i tell em to go fuck their selves as i hate being told there is no such thing
Since having this disease I have meet some real great people who I chat with all the time
I will admit I do have days when all u want to do is cry or worse but then think heck why should this crap beat me as I am a warrior and carry on , I do try to live a normal life or as good as and do have a bad habit of pushing my boundaries well to far and then paying for it .
My advise is no matter what battle on fight the fight and do not give it a chance to get to u .
If u ever want to chat find me on here and am around i have got good ears to listen and try to figure out what you can do and I do have a daft sense of humour .