Story about CRPS Complex Regional Pain Syndrome , Ectodermal Dysplasia.

My Journey

Jun 23, 2026


I GOT HURT WATERSKING IN JUNE OF 2004. MY LIFE WAS CHANGED IN A SPLIT SECOND. I WAS WATER SKING AND FELL AND THE SKI DID NOT COME OFF OF MY RIGHT LEG AND WENT OVER MY HEAD. RIGHT BEFORE I BLACKED OUT I THOUGHT MY ENTIRE LEG HAD BEEN TORN OFF OF MY BODY. MY EX HUSBAND WAS IN IRAQ DOING HIS SECOND TOUR. I WAS DIAGNOSED WITH CRPS THE VERY DAY HE WAS RETURNING FROM IRAQ. THEY INJECTED NUMEROUS SPINAL BLOCKS TO TRY AND STOP THE PAIN.

 

NEEDLESS TO SAY NOTHING WORKED. SO BEGAN MY JOURNEY... I HAVE DONE MANY MANY THINGS TO HELP WITH MY PAIN TO NO AVAIL. I AM DOING KETAMINE RIGHT NOW AND IT SEEMED TO BE WORKING UNTIL I FELL DOWN AND BROKE BOTH OF MY ANKLES SEVERELY. NEEDLESS TO SAY IT IS STILL A LONG ROAD THAT I CAN'T SEEM TO GET OFF. I AM HOPING THAT I CAN HELP SOMEBODY WITH SOMETHING THAT THEY WONDER WHY THIS SEVERE PAIN AND NOT GETTING ANY BETTER FROM. GOING FROM DR. TO DR. AND THEM TELLING THEM THAT EVERYWTHING IS JUST FINE WITH THEM. I HOPE THAT MY SMALL STORY CAN HELP SOMEONE OUT THERE.

 

 

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