There are 254 people in the Ectodermal Dysplasia map
296 people with Ectodermal Dysplasia have joined the DiseaseMaps community map. They have shared 257 first-person answers and 14 stories about living with the condition.
My son is born in 2000 and he was diagnosed HED when he was 9 months old. Pointy teeth, no hair, no sweating. He his now 15 and doing fine with who he is.
He know he is love for who he is, and he is a sweet, loving, caring, gamer guy!
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12 people with Ectodermal Dysplasia have taken the SF36 survey. Mean of Ectodermal Dysplasia is 2211 points (61 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
