296 people with 外胚层发育不良 have joined the DiseaseMaps community map. They have shared 257 first-person answers and 14 stories about living with the condition.
12 外胚层发育不良患者已参加了SF36调查问卷. Mean of 外胚层发育不良 is 2211 points (61 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey