- Cyclic vomiting syndrome
- Interviews
Cassandra Katharina Minerva's interview
How did all start?
I had this since birth
Do you already have a diagnosis? How long did it take you to get it?
I have one. Took 30 years to get.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurology, mitochondrial dysfunction
What has been the most useful thing for you so far?
Amitriptyline in combination with the so called mito cocktail: L-Carnitine, CoQ10 and B vitamins
What have been your biggest difficulties?
I was misdiagnosed and so treated very wrong for about 30 years. No one in my country has ever heard of Cyclic Vomiting Syndrome
How has your social and family environment reacted? Have your social or family relationships changed?
Not really - as I never WAS healthy
What things have you stopped doing?
Overexhausting myself, caring what others may think of my
What do you think about the future?
Will be great
So far, which years have been the best years in your life? What have you done during them?
The years since getting the correct diagnosis, then I actually found working medication
What would you like to do if you didn’t have your condition?
More
If you had to describe your life in a sentence, what would it be?
Being chronically sick is a thing which affects all aspects of life, but you can find happiness :-)
Finally, what advice would you give to a person in a similar situation?
Never stop looking for working medication!
