A Cyclic vomiting syndrome story

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I have suffered with neuro migraines since I was 12. I knew if I got to the vomit point the pressure would release, and I would be ok. There were only a few times as a child I had uncontrolled vomiting. It was always the "flu". I didn't have serious issues until pregnancy. Then it was "hormones". All my migraines, were normal, I have family history of it, sinus issues, I heard it all. At 31, I was hospitalized with diverticulitis and the vomiting started with severe migraines. Then docs started calling it "sickly stomach". Everything set me off, stress especially. It took 3 years to get a diagnosis. I was hospitalized yet again, it had been 10 days and the gastrointestinal doc walked in said Cyclic Vomiting Syndrome and abdominal migraines. WTH? I call BS. I literally laughed. Then I did the research. Textbook. How did everyone else miss it? My neurologist is supposed to be one of the best. I gave him what the gastrointestinal doc gave me, he said nope, only children have that, and dismissed it. 7 years later, new neurologist, new PCP and I am worse than ever, but I know so much more than most about my disease. I am a part of several support groups, both for CVS and chronically ill, and I am participating in a study to bring awareness of what it's like for us.  There has been a possible non pharmaceutical, non drug or food related control method, I am trying both. No, I am not a marijuana smoker, I never was, I am not now. Debunked.