People in the map

Total

Surveys done

Total

Years with the condition

Mean

89

Affected

52

Family and friends

0

Advisers

0

Researchers

0

Healthcare professionals

0

Organizations

SF36 Survey Stats

4

Surveys done

Take the survey

Total health score

Cystinosis

Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best

Quality of life with Cystinosis: SF-36 health survey results reported by 4 patients on DiseaseMaps. Scores range from 0 (worst) to 100 (best).
Dimension	Score (0-100)
Physical functioning	46
Role limitations due to physical health	56
Role limitations due to emotional problems	58
Energy fatigue	53
Emotional well being	70
Social functioning	63
Pain	61
General health	51
Total health score (0-3600)	1975

Multiple Sclerosis

1646

Chronic myelogenous leukemia

2139

Lupus

1428

Rheumatoid Arthritis

1183

Diabetes

1526

Hereinafter the score ranges from 0 to 100 being 0 the worst and 100 the best

Physical functioning

Cystinosis

General population

86.66 HIV

83.01 Hip replacement

21.86 Lung cancer

55.21

Role limitations due to physical health

Cystinosis

General population

86.43 HIV

63.96 Hip replacement

12.63 Lung cancer

32.69

Role limitations due to emotional problems

Cystinosis

General population

91.77 HIV

60.83 Hip replacement

69.53 Lung cancer

66.87

Energy fatigue

Cystinosis

General population

64.51 HIV

61.67 Hip replacement

42.69 Lung cancer

47.05

Emotional well being

Cystinosis

General population

71.14 HIV

62.98 Hip replacement

60.11 Lung cancer

60.03

Social functioning

Cystinosis

General population

89.47 HIV

72.81 Hip replacement

55.21 Lung cancer

68.70

Pain

Cystinosis

General population

78.83 HIV

74.70 Hip replacement

31.62 Lung cancer

55.82

General health

Cystinosis

General population

66.54 HIV

47.80 Hip replacement

58.64 Lung cancer

43.28

Total score of Cystinosis: 1975

Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best

Statistics of Cystinosis

People in the map

Surveys done

Years with the condition

89

Affected

52

Family and friends

0

Advisers

0

Researchers

0

Healthcare professionals

0

Organizations

Graphs

Survey

SF36 Survey Stats

4

Surveys done

Total health score

Cystinosis

Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best

Multiple Sclerosis

1646

Chronic myelogenous leukemia

2139

Lupus

1428

Rheumatoid Arthritis

1183

Diabetes

1526

Hereinafter the score ranges from 0 to 100 being 0 the worst and 100 the best

Physical functioning

Cystinosis

General population

86.66

HIV

83.01

Hip replacement

21.86

Lung cancer

55.21

Role limitations due to physical health

Cystinosis

General population

86.43

HIV

63.96

Hip replacement

12.63

Lung cancer

32.69

Role limitations due to emotional problems

Cystinosis

General population

91.77

HIV

60.83

Hip replacement

69.53

Lung cancer

66.87

Energy fatigue

Cystinosis

General population

64.51

HIV

61.67

Hip replacement

42.69

Lung cancer

47.05

Emotional well being

Cystinosis

General population

71.14

HIV