Skip to content
Help us to help more people
  2. Cystinosis
  3. Stories
Story about Cystinosis .

Mum of 2 girls with cystinosis

Jul 28, 2017

By: Hélène

Cystinosis
My 2 daughters Alix ( born in 2016) and Helga (born in 2017) have cystinosis. They are threated in Robert Debré  (Paris) and are both with Cystagon. 

 

Know someone who should read this story? Share it

Tell my story
0 comments

Login or register to leave a comment

Celebrities with Cystinosis

Celebrities with Cystinosis
Living with Cystinosis

Living with Cystinosis. How to live with Cystinosis?
Couple and Cystinosis

Is it easy to find a partner and/or maintain relationship when you hav...
Cystinosis treatments

What are the best treatments for Cystinosis?
Latest progress of Cystinosis

What are the latest advances in Cystinosis?
Prevalence of Cystinosis

What is the prevalence of Cystinosis?
Is Cystinosis hereditary?

Is Cystinosis hereditary?
Cystinosis prognosis

Cystinosis prognosis