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Cystinosis
Stories
Mum of 2 girls with cystinosis
Jul 28, 2017
By:
Hélène
Cystinosis
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My 2 daughters Alix ( born in 2016) and Helga (born in 2017) have cystinosis. They are threated in Robert Debré (Paris) and are both with Cystagon.
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