There are 204 people in the 22q11 DiGeorge Syndrome map
215 people with 22q11 DiGeorge Syndrome have joined the DiseaseMaps community map. They have shared 245 first-person answers and 17 stories about living with the condition.
While in the NICU I was diagnosed with DiGeorge Syndrome. I was five weeks old at the time of diagnosis. We are moving forward with all of my specialist appointments to determine the range of my syndrome.
8 people with 22q11 DiGeorge Syndrome have taken the SF36 survey. Mean of 22q11 DiGeorge Syndrome is 1821 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
