8

Which advice would you give to someone who has just been diagnosed with 22q11 DiGeorge Syndrome?

Advice for the newly diagnosed with 22q11 DiGeorge Syndrome, written by people who have lived it. What they wish they had known on day one.

22q11 DiGeorge Syndrome advice
2 answers
Translated from spanish Improve translation
It should be taken with peace of mind, the science moves forward in leaps and bounds and there are increasingly more ways of help to improve some diseases and in the cognitive part, we have more and more clear that we know very little of what can be achieved through our brain, we have the example of a person with Down Syndrome , that his primary symptom was mental retardation, and today they are taking university courses. The límiteslos we provide.

Posted Mar 8, 2017 by Patricia 1211
Translated from portuguese Improve translation
It does not cover much , have faith, and live one day at a time. And I would like to be informed all the positives and negatives of the disease,

Posted Sep 30, 2017 by Luciana 1000

22q11 DiGeorge Syndrome advice

22q11 DiGeorge Syndrome life expectancy

What is the life expectancy of someone with 22q11 DiGeorge Syndrome?

3 answers
Celebrities with 22q11 DiGeorge Syndrome

Celebrities with 22q11 DiGeorge Syndrome

2 answers
Is 22q11 DiGeorge Syndrome hereditary?

Is 22q11 DiGeorge Syndrome hereditary?

1 answer
Is 22q11 DiGeorge Syndrome contagious?

Is 22q11 DiGeorge Syndrome contagious?

1 answer
ICD9 and ICD10 codes of 22q11 DiGeorge Syndrome

ICD10 code of 22q11 DiGeorge Syndrome and ICD9 code

1 answer
Natural treatment of 22q11 DiGeorge Syndrome

Is there any natural treatment for 22q11 DiGeorge Syndrome?

1 answer
Living with 22q11 DiGeorge Syndrome

Living with 22q11 DiGeorge Syndrome. How to live with 22q11 DiGeorge Syndro...

3 answers
22q11 DiGeorge Syndrome diet

22q11 DiGeorge Syndrome diet. Is there a diet which improves the quality of...

3 answers

World map of 22q11 DiGeorge Syndrome

Find people with 22q11 DiGeorge Syndrome through the map. Connect with them and share experiences. Join the 22q11 DiGeorge Syndrome community.

Stories of 22q11 DiGeorge Syndrome

22Q11 DIGEORGE SYNDROME STORIES
22q11 DiGeorge Syndrome stories
I was diagnosed at 1 year of age. 
22q11 DiGeorge Syndrome stories
I have 22q. I wasn't diagnoses till after my youngest was born, then found myself, middle son and youngest have digeorge syndrome.  More story to come 
22q11 DiGeorge Syndrome stories
My daughter was diagnosed at 5 days old with digeorge. She is now 8 months old. We are still learning about her spectrum.
22q11 DiGeorge Syndrome stories
HE HAS 22Q DELETION. CLEFT LOW CALCIUM  KIDNEY STONES TWO STROKES  HYDROCEPHALUS  FEEDING ISSUES  LOW MUSCLE TONE  DEVELOPMENTAL DELAY  
22q11 DiGeorge Syndrome stories
While in the NICU I was diagnosed with DiGeorge Syndrome. I was five weeks old at the time of diagnosis. We are moving forward with all of my specialist appointments to determine the range of my syndrome. 

Tell your story and help others

Tell my story

22q11 DiGeorge Syndrome forum

22Q11 DIGEORGE SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map