Story about Dravet Syndrome .

Madolynn

Jun 23, 2026


We got Madolynn's diagnosis whe she was about 8 months old. At this time she had only 1 seizure, but it was the "big one". Her seizure that July night lasted over an hour before she was sedated enough to meek it stop. To date, we still have a fairly low GTC count (about) but she suffers from myoclonics daily. She recently has also stared having complex partials. Madolynn takes keppra and onfi daily and uses diazepam as a rescue. Currently no significant developmental delays are noted.

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