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Which advice would you give to someone who has just been diagnosed with Dravet Syndrome?
Advice for the newly diagnosed with Dravet Syndrome, written by people who have lived it. What they wish they had known on day one.
Go on a Ketogenic diet as young as possible
Posted Feb 18, 2017 by Nicholas 1000
Avoid a certain group of medications, try to have as much as hygiene policies in the house as possible, keep away from the heat and hot showers, keep germs away.
Posted Dec 19, 2017 by Antigoni 2500
