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What is the life expectancy of someone with Dravet Syndrome?

Life expectancy with Dravet Syndrome: what research and real patients say, recent advances, and a medically reviewed summary with sources.

Dravet Syndrome life expectancy
5 answers
1 in 5 will not reach adulthood

Posted Feb 18, 2017 by Nicholas 1000
10-15% of Dravet patients die from SUDEP, mainly in childhood.

Posted Dec 2, 2017 by Anna 2020
This isn't a black and white answer. Studies have shown that there is around an 80% chance that children on the severe side of dravet will make it to adulthood. For less severe cases, the percentage is higher.

Posted Dec 15, 2017 by Cara Nunn 200
From what I read there is an 80% chance of making it to adult. But I think it really depends on how well the child or adult is taken care of I believe it depends on if they get their medications on time if their head is protected at all times if they're watching the heat in the cold that they're going in and out of. The less amount of seizures they have the better chance they have to make it to adulthood.

Posted Dec 17, 2017 by Lillyonha 1000
12-15

Posted Dec 18, 2017 by Antigoni 2500

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Stories of Dravet Syndrome

DRAVET SYNDROME STORIES
Dravet Syndrome stories
Hallo  man kann uns auch im Facebook finden.  Unter  Rina ein ganz besonderer Schmetterling   
Dravet Syndrome stories
Yoran is diagnosed with Dravet's syndrome at the age of 20 months. His first seizure happened at the age of 3 months, the second at 4 months and then the third at 9 months. After that the number of seizures increased to every 10 days. These were all ...
Dravet Syndrome stories
Epilepsi since the age of 7 months. Diagnosed whith DS in the year of 2014. 
Dravet Syndrome stories
Diagnosed Dravet at the age of 3
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Shortly after my sons 6 month shots he had a very high fever and had his 1st tc seizure. Then he kept having them despite not having a fever until after the seizure had already occurred. It confused all of our doctors and they categorized them as feb...

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