World map of Dravet Syndrome View more
  2. Dravet Syndrome
  3. Forum
  4. Top questions
  5. Question 17
17

What is the history of Dravet Syndrome?

History of Dravet Syndrome: when and how it was discovered, and the milestones in research since, medically reviewed.

History of Dravet Syndrome
1 answer
Severe myoclonic epilepsy of infancy (SMEI) was first described in France in 1978 and has been progressively recognised in many other countries. With the increasing number of cases, the characteristics of this epilepsy were more accurately defined, leading to a change in its name to Dravet syndrome in 1989.
Posted Dec 18, 2017 by Antigoni 2500

History of Dravet Syndrome

Dravet Syndrome life expectancy

What is the life expectancy of someone with Dravet Syndrome?

7 answers
Celebrities with Dravet Syndrome

Celebrities with Dravet Syndrome

2 answers
Is Dravet Syndrome hereditary?

Is Dravet Syndrome hereditary?

4 answers
Is Dravet Syndrome contagious?

Is Dravet Syndrome contagious?

5 answers
ICD9 and ICD10 codes of Dravet Syndrome

ICD10 code of Dravet Syndrome and ICD9 code

3 answers
Natural treatment of Dravet Syndrome

Is there any natural treatment for Dravet Syndrome?

3 answers
Living with Dravet Syndrome

Living with Dravet Syndrome. How to live with Dravet Syndrome?

3 answers
Dravet Syndrome diet

Dravet Syndrome diet. Is there a diet which improves the quality of life of...

6 answers

World map of Dravet Syndrome

Find people with Dravet Syndrome through the map. Connect with them and share experiences. Join the Dravet Syndrome community.
View map

Stories of Dravet Syndrome

DRAVET SYNDROME STORIES
Dravet Syndrome stories
RINA EIN GANZ BESONDERER SCHMETTERLING
Hallo  man kann uns auch im Facebook finden.  Unter  Rina ein ganz besonderer Schmetterling   
Dravet Syndrome stories
YORAN'S STORY
Yoran is diagnosed with Dravet's syndrome at the age of 20 months. His first seizure happened at the age of 3 months, the second at 4 months and then the third at 9 months. After that the number of seizures increased to every 10 days. These were all ...
Dravet Syndrome stories
ĆHRISTOFFER OLSSON'S STORY
Epilepsi since the age of 7 months. Diagnosed whith DS in the year of 2014. 
Dravet Syndrome stories
ANNALISA VAN DER WATT
Diagnosed Dravet at the age of 3
Dravet Syndrome stories
HOPE FOR DAUNTE.
Shortly after my sons 6 month shots he had a very high fever and had his 1st tc seizure. Then he kept having them despite not having a fever until after the seizure had already occurred. It confused all of our doctors and they categorized them as feb...

Tell your story and help others

Tell my story

Dravet Syndrome forum

DRAVET SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map