226 people with Duane Syndrome have joined the DiseaseMaps community map. They have shared 241 first-person answers and 11 stories about living with the condition.
Xanti (male)
Date of Birth: September 14, 2006
Date of 1st diagnosis: April 3, 2008 by Dr. Walter Fierson. Duane’s Syndrome. Suggested one surgery only, the MRR.
Date of 2nd opinion diagnosis: May 21, 2008 by ...
I was born with Duanes. My grandma, uncle, father all have it. My mother is a carrier. My "eye tricks" have fascinated many and growing up with Duanes hasn't limited me. Duanes has been something that I don't hide because of how unique it's made me!
A year after my second daughter was born we had a picture taken with Santa and someone noticed her eyes were crossed. I made a point to say no they aren't I know exactly what she was looking at and it looks like one eye just isn't looking. They disag...
11 people with Duane Syndrome have taken the SF36 survey. Mean of Duane Syndrome is 2380 points (66 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
