Ectodermal Dysplasia - Porto, Portugal
Sep 19, 2016
By: Vasco
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My sister was born in 1988 with ectordermal dysplasia (hair/nails type).
Almost no hair in head and very few in other body parts and nails are very fragile.
We have run over all specialists in country and no cure appointed so far.
Joining this community looking to find updates about a possible cure for this genetical desease.
Happy to share experiences and contribute!
Vasco
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