Life rolls on
Jan 14, 2018
By: stairphobe
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I was diagnosed with Ehlers-Danlos syndrome when I was 13, after years and years of unexplained pain and weird injuries, when I started spontaneously dislocating multiple joints. One of the worst dislocations was when I was 14. My right thumb dislocated and would not reduce. I just had to deal with it for a week or two, when my ortho decided to do a bone fusion (3 weeks before I had AP testing). When I was 14, I was also diagnosed with autonomic dysfunction and peripheral neuropathy. When I was 16, I was diagnosed with mast cell activation syndrome. I'm now 18 and in college. I use a wheelchair full time and play quad rugby.
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