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Does Ehlers Danlos have a cure?

Is there a cure for Ehlers Danlos? Current treatment landscape and research progress, medically reviewed, plus patient experiences.

Ehlers Danlos cure
17 answers
No. Not yet. We don't even know what gene causes the EDS type Hypermobility.

Posted May 25, 2017 by Maria 2051
There is no known cure for eds

Posted May 27, 2017 by Jude 2050
There is no cure

Posted May 28, 2017 by Celi 2000
No. It is invisible, untreatable, and incurable.

Posted May 31, 2017 by KathrynOConnor 2200
No

Posted Jun 4, 2017 by Richelle 1750
Currently EDS does not have a cure

Posted Sep 27, 2017 by Lbond94 4100
No it dosen t but we keep looking

Posted Oct 6, 2017 by Sasha 2050
No but we live in hope

Posted Oct 7, 2017 by Sharon 7050
Not currently. Research is being done to isolate the causes.

Posted Oct 7, 2017 by Brittany 500
No. My hypothesis is that our breeding pool is too concentrated(cousins mating with cousins) and our weak genetic markers are pairing with the same recessive genes causing Ehlers Danlos. Only through pairing with stronger genes can we lessen the number of individuals being born with EDS.

Posted Oct 25, 2017 by Dolores 3050
Nope. Gene therapy is a possibility eventually but right now all that can be done is manage symptoms as well as possible.

Posted Jan 14, 2018 by stairphobe 3070
Not remotely, however CRISPR and gene therapy seem promising in the near future

Posted May 26, 2018 by Danielle 1500
No, there is no cure and very little treatment.

Posted Mar 21, 2019 by pianocat_61 1400
No we can’t edit our genes. YET!

Posted Sep 29, 2019 by Amy 13500
While there is no cure for the Ehlers-Danlos syndromes, there is treatment for symptoms, and there are preventative measures that are helpful for most.

Posted Mar 11, 2020 by MegTheMariner 1870
There is no cure. There is a possibility gene therapy could do something, nothing promising exists yet.

Posted May 12, 2020 by Alex 3551
No not at this time

Posted Nov 19, 2021 by NuNu 2550

Ehlers Danlos cure

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6 answers
Is Ehlers Danlos hereditary?

Is Ehlers Danlos hereditary?

19 answers
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Is Ehlers Danlos contagious?

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World map of Ehlers Danlos

Find people with Ehlers Danlos through the map. Connect with them and share experiences. Join the Ehlers Danlos community.

Stories of Ehlers Danlos

EHLERS DANLOS STORIES
Ehlers Danlos stories
Eu nasci com Síndrome de Ehlers-Danlos, afinal a Síndrome de Ehlers-Danlos é uma doença genética. Eu descobri que tinha Síndrome de Ehlers-Danlos aos 45 anos, por acaso. Vendo uma apresentação sobre Score de Beighton (método de avaliaçã...
Ehlers Danlos stories
I suffered my entire life with issues and signs of Hypermobile type Ehlers-Danlos Syndrome, including extreme flexbility as a child that I "grew out of" in my young adulthood, slowlyl stiffening with age and early onset arthritis. Like too many, doct...
Ehlers Danlos stories
Lost all my friends all I know is chronic pain, 29 years has passed in a blink of an eye. I am lonely depressed and given up on by doctors who just label me and close the door. Stick me on meds and shut me up. I have degeneration in my spine 3 hernia...
Ehlers Danlos stories
I have always been sick all my life, not knowing why. When I started taking my BP more frequently, I realized alot of my symptoms were BP related, thus since been dx with dysautonomia, due to EDS. Before this time, I had pursued answers, with many cl...
Ehlers Danlos stories
I'm 54 years old and have had to learn to "just live with it". Stretchy skin and bendy joints have the pain in my life. My skin has been so thin that what would be a bruse for a normal person was a laceration for me. My knees are a wreck. My body hur...

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Ehlers Danlos forum

EHLERS DANLOS FORUM
Ehlers Danlos forum
We were in a car accident several months ago. Before that, I was hypermobile, but not as badly as I am now. Could the trauma of the accident trigger more issues with my connective tissue overall? For example, even though my feet/legs were uninjured, ...
Ehlers Danlos forum
So in the past 2-3 months i have been doing acupunture but after wards im in so much pain to wear my doctor puts the needles, does this happen to you?
Ehlers Danlos forum
The doctor has recommended exercise and physiotherapy to strengthen the muscles of my son and, then, protect his joints... anybody can advise in what kind of exercises or sport? I thin swimming may be the best option… Many thanks!
Ehlers Danlos forum
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