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Is it easy to find a partner and/or maintain relationship when you have Ehlers Danlos?
People with experience in Ehlers Danlos give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Ehlers Danlos. What are the possible difficulties in having a relationship?
Unless you find someone who is really willing to get through all of the pain and all of the problems that might arise, you're going to have some troubles. I am in a relationship for 4 years now. We began dating before I was diagnosed but way after I started having pain and joint problems. One of the major difficulties is getting him to understand how in some days I feel like absolute sh*t, all of my joints hurt and I cannot give another step. How I can't stand for very long or ow I need to sit every so often.
When you're looking for a partner, try to be honest. I think no one likes to be dating someone and then only discovering what their life really is.
When you're looking for a partner, try to be honest. I think no one likes to be dating someone and then only discovering what their life really is.
Posted May 25, 2017 by Maria 2051
I don't think eds stops you from meeting a partner. My partner is really helpful and caring. It is an undertaking though, caring for someone. So it's best to be open with a potential partner about eds
Posted May 27, 2017 by Jude 2050
That depends on how bad you feel. Those with heavy pain and limitations have a hard time but not so with those with milder forms. Unfortunately, the rate of divorce is higher among eds patients because chronic pain is difficult for the spouse and "firms better or worse is harder than they thought".
Posted May 28, 2017 by Celi 2000
Yes. And no. EDS does not define you, it is just a part of your overall makeup. If you can learn ways to cope with your symptoms that allow you to maintain a social life (because really, how are you going to meet people if you never get out), it's entirely possible. I've personally never felt like I've had to "settle" when it comes to men and I have brutally high standards. Take care of yourself first and your increasing wellness will bring the good people into your life if you truly "live" it. Oh. And stay off of EDS support Facebook groups. Those are the people who are going to die alone! Misery loves company and they all hang out there!
Posted May 31, 2017 by KathrynOConnor 2200
If you can find a super understanding partner it is very easy to find love or even a common relationship with someone.
Posted Sep 27, 2017 by Lbond94 4100
Yes I am married and have been for 7 years
Posted Oct 6, 2017 by Sasha 2050
Yes as long as they are understanding
Posted Oct 7, 2017 by Sharon 7050
Be comfortable with it yourself before entering into relationships. As with all conditions/diseases/afflictions, there will be setbacks and roadblocks but that shouldn't deter anyone from establishing a healthy social life. Be yourself, be honest, be realistic, you can set goals but not expectations. Communication is key, always be kind.
Posted Oct 25, 2017 by Dolores 3050
It depends on you and the partner! A partner who's understanding of your limits and needs is the main thing, just like for any other relationship. The last person I dated was very eager to learn and understand EDS, and he was quick to help me but he also respected when I said I didn't need help.
Posted Jan 14, 2018 by stairphobe 3070
Ehlers Danlos does not affect the way you can have relationships
Posted Sep 29, 2019 by Amy 13500
I think as an invisible illness, its easy enough to find a partner. In the long term you need to make sure the person you're with believes you about your illness and understands your limitations.
Posted May 12, 2020 by Alex 3551
Yes but it can be very trying on the other partner that does not have it depending on which type that you have and if you have other conditions along with ehlers-danlos syndrome
Posted Nov 19, 2021 by NuNu 2550
