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What is the prevalence of Ehlers Danlos?
How many people does Ehlers Danlos affect? Does it have the same prevalence in men and women? And in the different countries?
The last data say 1 in 5,000 but probably way more. What happens is that this is a syndrome that not many doctors know about. So this means that even if there are more people who have it, their doctors won't know what it is and they will live undiagnosed. Supposedly it affects more women but that might be because statistically women complain more about their pain than man.
My mother and my grandmother were diagnosed because I started doing research on my problems and discovered EDS.
My mother and my grandmother were diagnosed because I started doing research on my problems and discovered EDS.
Posted May 25, 2017 by Maria 2051
Eds is more common among women although it is not rare for men to have it to. A lot of people are hypermobile with no pain and problems.
The prevalence is 1 in 5000 i think
The prevalence is 1 in 5000 i think
Posted May 27, 2017 by Jude 2050
Each type is different. Typically all EDS is RARE although some think it's not as rare as originally thought but falsely diagnosed as fibromyalgia
Posted May 28, 2017 by Celi 2000
The hypermobility and classical forms are most common; the hypermobility type may affect as many as 1 in 10,000 to 15,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are very rare.
Posted May 31, 2017 by KathrynOConnor 2200
EDS affects men and women both equally but unfortunately it tends to show more effects on women because of our hormonal build
Posted Sep 27, 2017 by Lbond94 4100
It is suppsably pretty rare but we believe it's just not diagnosed properly a lot of the time
Posted Oct 6, 2017 by Sasha 2050
1.5 million people world wide
Posted Oct 7, 2017 by Sharon 7050
Older EDS information prevalence is said to be 1/10,000 to 1/25,000 with approximately 20,000 to 50,000 in the US alone. Recent epidemiology says it's closer to 1/5,000 with 1.5 million cases reported Worldwide. Diagnosis is difficult due to the fact that children are naturally more flexible, and men are less likely to seek medical assistance than females. Age and the natural aging process contributes to increased diagnosis later in life.
Posted Oct 25, 2017 by Dolores 3050
All types of EDS combined are estimated to occur in 1 in 5000 people. There are fewer than 200000 cases in the US per year.
Posted Jan 14, 2018 by stairphobe 3070
Eds is 1 in 5,000 but doctors believe that it is underdiagnosed
Posted Sep 29, 2019 by Amy 13500
At this time, research statistics of the Ehlers-Danlos syndromes show the total prevalence as 1 in 2,500 to 1 in 5,000 people. Recent clinical experience suggests that Ehlers-Danlos syndrome may be more common. The conditions are known to affect both males and females of all racial and ethnic backgrounds.
Posted Mar 11, 2020 by MegTheMariner 1870
1/5000 people have hypermobile EDS, with other subtypes being much rarer.
Posted May 12, 2020 by Alex 3551
Sorry I don't have any information about that
Posted Nov 19, 2021 by NuNu 2550
