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Ehlers Danlos prognosis
What is the prognosis if you have Ehlers Danlos? Quality of life, limitations and expectatios of someone with Ehlers Danlos.
People with EDS generally have a normal life expectancy, except for vascular EDS (which is around 48 years). People with EDS can become quite severely disabled or they can be virtually asymptomatic.
Posted Jan 14, 2018 by stairphobe 3070
Abraham Lincoln us President not 100% proof, but the Doctor's says that is a very good chance of he hadde Ehlers-Danlos Syndrom.
Posted May 28, 2018 by T_T_T© 100
It depends on the type of Ehlers Danlos that you have
Posted Sep 29, 2019 by Amy 13500
The prognosis depends on the type of Ehlers-Danlos syndrome and the individual. Life expectancy can be shortened for those with the Vascular Ehlers-Danlos syndrome due to the possibility of organ and vessel rupture. Life expectancy is usually not affected in the other types. There can be a wide or narrow range of severity within a family, but each person’s case of Ehlers-Danlos syndrome will be unique. While there is no cure for the Ehlers-Danlos syndromes, there is treatment for symptoms, and there are preventative measures that are helpful for most.
Answer is from the Ehlers-Danlos Society’s website.
Answer is from the Ehlers-Danlos Society’s website.
Posted Mar 11, 2020 by MegTheMariner 1870
EDS is degenerative. How severe and how quickly varies based on genetics and how you treat your joints. My joints have gotten more painful and weaker as time goes on. There is no reason for me to expect this to improve, but I can try to avoid overextending myself and making it worse faster.
Posted May 12, 2020 by Alex 3551
On the website you medicine health.com they say patients with a classical and hypermobility forms of ehlers-danlos Syndrome have a normal life expectancy about 80% of patients with vascular ehlers-danlos syndrome will experience a major health event by age 40 in the life expectancy is shortened with an average age of death of 48 years I also found an answer to this question what is the prognosis of EDS say people affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40 the lifespan of people with the kyphoscoliosis form is also decreased largely due to the vascular involvement in the potential for restrictive lung disease
Posted Nov 19, 2021 by NuNu 2550
