There are 65 people in the Erdheim Chester Disease map
74 people with Erdheim Chester Disease have joined the DiseaseMaps community map. They have shared 292 first-person answers and 3 stories about living with the condition.
The cancer in you
And my Orthopedic Doctor said; “YOU HAVE CANCER IN YOUR BONES – LEGS, ARMS AND POSSIBLY IN YOUR BRAINS AND ORGANS. I CANNO TREAT YOU.
Cancer? Are you telling me I have cancer? How could this be poss...
0 people with Erdheim Chester Disease have taken the SF36 survey. Mean of Erdheim Chester Disease is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey