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How do I know if I have Essential Thrombocythemia?

What signs or symptoms may make you suspect you may have Essential Thrombocythemia. People who have experience in Essential Thrombocythemia offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Essential Thrombocythemia?
2 answers
Many ET patients are asymptomatic. Consequently, the disease is often diagnosed as part of a routine check-up, after a blood test reveals a high platelet count. When symptoms are present, they may include fatigue, or may be related to small or large vessel disturbance or bleeding.

Common ET Symptoms related to small vessel disturbances may include:

Headache
Vision disturbances or silent migraines
Dizziness or lightheadedness
Coldness or blueness of fingers or toes
Burning, redness, and pain in the hands and feet
When bleeding is present as a symptom of essential thrombocythemia, it can manifest as:

Easy bruising, nosebleeds or heavy periods
Gastrointestinal bleeding or blood in the urine
Thrombotic complications can also occur, resulting in:

Stroke
Transient ischemic attack (TIA)
Heart attack
Deep vein thrombosis or pulmonary emblous (blood clot in the lung)
Blood clotting in unusual locations, such as the abdominal veins

Posted Aug 11, 2017 by Steve 2685
you need to see a doctor and a hematologist!
you will do some blood tests and a CT scan and finally a bone marrow biopsy to confirm!!!
if you are worried...GET CHECKED!!!

Posted Feb 7, 2019 by James 3550

Do I have Essential Thrombocythemia?

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World map of Essential Thrombocythemia

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Stories of Essential Thrombocythemia

ESSENTIAL THROMBOCYTHEMIA STORIES
Essential Thrombocythemia stories
With a routine blood test my life changed. I had been having severe migraine headaches and I had never had even small headaches really so my Dr. made the decision to test my blood from that to a hematologist and more blood work I was diagnosed. My bl...
Essential Thrombocythemia stories
In 2011 at the age of 42 I was diagnosed with Myeloproliferative Neoplasm (or MPN) and after a bone marrow biopsy, Essential Thrombocythemia (ET) was diagnosed. I am also JAK2+ I take a daily dosis of 1 500mg Hydrea which is an oral chemo and somet...
Essential Thrombocythemia stories
Routine blood test to check on my iron counts as I also have thalassemia minor, showed platelets at 1mil. In the process of being diagnosed in 2006, had a heart attack (after having a colonoscopy.)I had a heart cath which showed blockage in 2 arterie...
Essential Thrombocythemia stories
Last year (winter of 2015/2016) I had a virus and, at one stage, collapsed and was taken to hospital with a suspected heart attack/stroke. I had neither but my platelet level was elevated at over 600. However, the hospital ascribed to the virus and d...
Essential Thrombocythemia stories
Was having trouble with health symptoms which affected my work ethic, a job I loved, so I asked my internist to either fix me or make it so I didn’t care! My symptoms were sudden confusion, dizzyness, a phantom feathery feeling and tingling in my ...

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