What is the life expectancy of someone with Fanconi Anemia?

It used to be 12. Then it used to be 20-25. I'm unsure of what it is now. Everyone is different though. The majority pass away of cancer or so that's what I've noticed.

Into their 30's. There are several ranging from 20 - 50's.
Cancers especially head and neck cancers and bonemarrow failure.

De gemiddelde leeftijd is nu in 2017 op 38 jaar, al is dit een scheef gemiddelde omdat er vroeger veel kindersterfte waren. terwijl er ook patiënten van 30, 40, 50 en 60 jaar zijn. Sinds 2014 is FA geen kinderziekte meer maar een chronische aandoening

I do believe it depends on the type of think I need anemia and it also depends on the type Transplant and the type of donor used. It also depends on genetics and it depends on how old you were when they were transplant it and if they were transplant it at all


My 19-year-old daughter had a transplant bone marrow Allogenic stem cell. She was seven she’s now 19. With the way her treatment plan was and how it affects her future is she is extremely high risk for MDS secondary diagnosis did you the treatment and the disease plus the genetic mutation that also connects MDS cancer probabilities and also The anemia that runs on my maternal side in general. She seems to have displayed basic symptoms of MDS secondary

Sincethw I transplant. She has thrived against all odds. I do believe she contracted Covid earlier in 2020, she’s been having ongoing basic upper respiratory issues ever since. I thought it was stress. We’re gonna do a CBC panel and I communicated with MDS cancer center and I’m waiting to hear back.

There are so many different variables do you look into and research so you can know your long-term prognosis. Since we’re finally figuring out the rest of the families hidden illnesses and the genes and the mutations I’ll connect with a variety of other specific genes that happen mutated and found with me and Cody anyway

My daughter had the one with the platelets and that also elevator service for MDS secondary cancer dude you think only anemia and mutated gene and the type of transplant and the type of donor used.


I found this all out last night while researching her symptoms and the prognosis after the transplant. Do the research. You are your advocate and you are the advocate for everyone else with this disease and similar. That’s why no one knows much about it. She will be 20 in May. And I’m very nervous so please continue to see your doctors encourage people to see doctors after the transplant even years after because it’s very possible to contract the cancer they tell you about even after thinking everything’s fine for years.