There are 5 people in the Fatal Familial Insomnia map
5 people with Fatal Familial Insomnia have joined the DiseaseMaps community map. They have shared 82 first-person answers and 0 stories about living with the condition.
Social reality of prion diseases are very unknown by the population. This study aims, as last objective, to cover this gap and help in a better knowledge of the social reality of families who live and suffer the effects of prion pathologies.
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2 people with Fatal Familial Insomnia have taken the SF36 survey. Mean of Fatal Familial Insomnia is 1503 points (42 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
