Fragile x is a spectrum disorder, so people can be affected severely or less so. Some people with full mutation fragile x are also diagnosed with autism. The fragile x causes intellectual disability, with special difficulties in sequencing and short term memory. Emotionally, fragile x causes anxiety. people with fragile x are often very social, but their condition interferences with their success.
There are 151 people in the Fragile X Syndrome map
158 people with Fragile X Syndrome have joined the DiseaseMaps community map. They have shared 322 first-person answers and 7 stories about living with the condition.
When my son was 18 months old, it was decided that he was globally delayed in his development. After much therapy (speech and physio) at the age of 3 1/2 he was finally diagnosed with Fragile X.
A steep learning curve began. We were advised to c...
1 people with Fragile X Syndrome have taken the SF36 survey. Mean of Fragile X Syndrome is 1840 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey