What signs or symptoms may make you suspect you may have Galactosemia. People who have experience in Galactosemia offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

▷ How do I know if I have Galactosemia?

Stories of Galactosemia

GALACTOSEMIA STORIES

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REBECCA MY ONLY BIG LOVE

my 17 yrs old daughter rebecca was born with cg..... to be finished

660

8/15/16, 11:20 AM by Simo

TRANSPLANT AT 2 MONTHS OLD

Steven II was born on Sept 28, 2012. Although he was born a month early he shares his birth-date with his late maternal grandmother. When Steven was born, he was diagnosed with Galactosemia. On Thanksgiving night (Nov 23, 2012) Steven was take...

442

5/28/17, 11:10 PM by Steven

GALACTOSAEMIA

My son Blaise was diagnosed with Galactoaemia at 6 days old

290

12/13/18, 3:15 AM by Naomi

JOSEPH

Joseph was born in 2012. At 5 days we got the call about the newborn screen. We switched to soy formula. He showed no symptoms, but then at 9 days he became septic, and ended up with meningitis. He was given 4 different antibiotics until the str...

286

7/8/20, 12:43 PM by ncasale

2 CHILDREN WITH CG

We have two children who are living with Classic Galactosemia. We are located in East TN.

124

10/29/21, 12:31 PM by Cudzilo

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Galactosemia forum

GALACTOSEMIA FORUM

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POORLY MANAGED GALACTOSAEMIA

I have very poorly managed galactosaemia, therefore zero energy all the time. If I go whole hog with diet restrictions, should

How do I know if I have Galactosemia?