Story about Glycogen Storage Disease .

My history hope it helps

Mar 30, 2017

By: Tiffany


I am a 43yr  white female who was Diagnosed at 2yrs  Herman Hospital & Texas Children's Hospital.

Rodney Howell & Dr. Collie

2 liver biopsies / 1 left leg muscle biopsy.

NG feeding tube & Pump with sustical until 15yrs old

1/4 cup cornstarch 3x day 

Adult years maintaining hypoglycemic episodes.

3 pregnancies to term / sever hypoglycemia during.

Physically exhausted with long stairs. chest pains. Cannot complete treadmil test. However ultrasound shows normal heart function. Blood sugar issues in morning and around 5 pm daily . small meals /milk are go to fixes for this.

Teenage years I was very stubborn and experimented with alcohol/ciggaretts and some cocaine.

As an adult I am a smoker.  If I drink at all this almost instantly gets me intoxicated. VERY LOW tolerance for alcohol.

Medications have been an issue throughout lifetime.  Antibiotics only if I have to. maybe 2x in 4 yrs. I am always skeptical about medicines and my lifer function.

I am not overweight  5/3  145lbs  although my last check up / ultrasound showed fatty liver. That has not reduced in size. 

 

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