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Can people with HFE hereditary haemochromatosis work? What kind of work can they perform?

Can you work with HFE hereditary haemochromatosis? Real patients share what jobs they do and how they adapted, plus practical guidance.

HFE hereditary haemochromatosis jobs
13 answers
Yes
Treatment is extremely effective and people can normally expect to lead a normal life once excess iron has been removed as long as no permanent organ damage has been caused prior to diagnosis.
The symptoms of haemochromatosis may interfere with work prior to diagnosis - especially fatigue and constant weakness.

Posted May 20, 2017 by Tony Moorhead 2051
Most of them they can do work. But please keep in mind that they are very easy tired and certainly after a blood-letting (or whatever it's called in English).

Posted Jun 3, 2017 by bewiki 4317
Yes but I depends on how bad symtoms are and how much it has damaged organs and joints

Posted Jul 22, 2017 by Tina 1501
I still work full time and am in the process of starting my own company, so HFE hasn't stopped me from working. My jobs aren't physically demanding though, so I can imagine people with more physically intensive jobs may struggle if they are experiencing joint pain or fatigue.

Posted Jul 22, 2017 by alohaitsaj 1501
Yes, depending upon the severity of the progress of the disease. If caught early and treated, one can lead a normal life.

Posted Jul 22, 2017 by Salena 2001
Yes of course you can work. This condition is treatable and one can lead a perfectly normal life. Most people can and do work in any field. The only reason one would not be able to work is if treatment came too late and the stored iron has caused serious damage to joints or organs.

Posted Jul 23, 2017 by Lorna 701
Can work in any field

Posted Jul 23, 2017 by Warbychick 1901
If it's treated early, there are few limitations to work/life. If iron levels have caused severe organ damage, physical limitations could occur. Each person is affected differently.

Posted Jul 23, 2017 by Stacy 550
They can do all kind of work - including being fighter pilots and astronauts ++.

Posted Jul 25, 2017 by Ketil Toska 2051
I teach and have done so for over 20 years, working full-time. Manual lifting and hard labor intensive tasks are difficult with pain

Posted Aug 2, 2017 by Natalie 2000
Im a third grade teacher and it is kicking my arse. Ive been teaching for over 30 years and love it! but i don't have the energy anymore.

Posted Sep 8, 2017 by Eileen 700
As long as it’s caught early and maintained you should be able to live a normal life for the most part.

Posted Apr 1, 2018 by Aimee 300
You can work well if you have the disease in balance and do blood draw as you should and have not received permanent damage caused by the disease.

Posted Nov 13, 2021 by yvonne 900

HFE hereditary haemochromatosis jobs

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World map of HFE hereditary haemochromatosis

Find people with HFE hereditary haemochromatosis through the map. Connect with them and share experiences. Join the HFE hereditary haemochromatosis community.

Stories of HFE hereditary haemochromatosis

HFE HEREDITARY HAEMOCHROMATOSIS STORIES
HFE hereditary haemochromatosis stories
Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
HFE hereditary haemochromatosis stories
Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
HFE hereditary haemochromatosis stories
I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
HFE hereditary haemochromatosis stories
I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...
HFE hereditary haemochromatosis stories
I was feeling achy in joints and tired for few years before diagnosis,gene test not offered or mentioned when living ln England until when came to Ireland, GP ordered gene test after blood test and talk showed signs of haemachromotosis.I would recomm...

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