There are 7 people in the Hermansky-Pudlak syndrome map

8 people with Hermansky-Pudlak syndrome have joined the DiseaseMaps community map. They have shared 214 first-person answers and 1 stories about living with the condition.

Hermansky-Pudlak syndrome life expectancy

What is the life expectancy of someone with Hermansky-Pudlak syndrome?

1 answer
Celebrities with Hermansky-Pudlak syndrome

Celebrities with Hermansky-Pudlak syndrome

1 answer
Is Hermansky-Pudlak syndrome hereditary?

Is Hermansky-Pudlak syndrome hereditary?

1 answer
Is Hermansky-Pudlak syndrome contagious?

Is Hermansky-Pudlak syndrome contagious?

1 answer

Stories of Hermansky-Pudlak syndrome

STORY

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Hermansky-Pudlak syndrome forum

QUESTION

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Statistics of Hermansky-Pudlak syndrome

2 people with Hermansky-Pudlak syndrome have taken the SF36 survey. Mean of Hermansky-Pudlak syndrome is 2178 points (60 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Hermansky-Pudlak syndrome