There are 7 people in the Hermansky-Pudlak syndrome map
8 people with Hermansky-Pudlak syndrome have joined the DiseaseMaps community map. They have shared 214 first-person answers and 1 stories about living with the condition.
2 people with Hermansky-Pudlak syndrome have taken the SF36 survey. Mean of Hermansky-Pudlak syndrome is 2178 points (60 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey