Mother of a son with hirschsprungs

Jan 6, 2016

Hirschsprung Disease

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My son was diagnosed with short segment hirschsprungs disease at birth, he has had two surgeries , a pull through then a corrective surgery to fix the muscular cuff. He is now over 9 month old and thriving. I'm anxious for what the future holds for him and if he will continue to stool normally or will struggle. It's hard not knowing any other parents dealing with this disease and what their experiences are.