Story about Hirschsprung Disease .

Jackson's Story

May 31, 2016

By: Jackson


Our family has had half a dozen cases of Hirschsprungs with only two survivors. Jackson has Total Colonic Hirschsprungs. He had his ileostomy bag removed at 6 months with a pull through and suffers from entrocolitis frequently. With monitoring his diet we are able to manage through some of the symptoms. Please reach out for support you aren't alone! 

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