Story about Hyper IgE Syndrome .

Hiper igE (Job Buckley)

Nov 27, 2015


_Procuro pessoas no Mundo especialmente no Brasil com esta doença_

_Meus níveis de igE ja chegaram a 40.000ui, por outro lado tenho infecções recorrentes de Bexiga e não a de pulmão como a maioria, por isso penso ter uma variação da doença e desejo investigar mais._

_Depois de tantos imunossupressores agora faço uso da Imunoglobulina Humana que tomo 6 frasco em 8hs de infusão todo mês._

_Antes eu vivia emcarne viva e viver era um sofrimento, agora tenho qualidade de vida._

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