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Which advice would you give to someone who has just been diagnosed with Hyper IgE Syndrome?
Advice for the newly diagnosed with Hyper IgE Syndrome, written by people who have lived it. What they wish they had known on day one.
Translated from portuguese
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Unfortunately our physicians are not YET prepared for a diagnostic interview.
• AVOID CORTICOSTEROIDS FOR PROLONGED PERIODS OF TIME AND IN HIGH DOSES
• There is a suspicion of the disease the first thing to do is the test of TOTAL igE that does not need to be requested by a physician and is not expensive
• Moisten the skin several times a day with specific creams for the skin ultra dry.
• Avoid baths time-consuming. If the skin is very hard to avoid the bathroom, do only a free with swaddling clothes
• Look for more from a doctor (if necessary) to make the diagnosis of preference immunologist, Although there is a dermatologist to take care even not being his specialty
• See if the symptoms that you have fits in with a primary immunodeficiency, fitting, lightweight to your doctor and ask for additional tests.
• Contact with groups of people who suffer from the same illness and exchange information
• Look for exercise (if you can)
• Help your doctor with additional information.
• AVOID CORTICOSTEROIDS FOR PROLONGED PERIODS OF TIME AND IN HIGH DOSES
• There is a suspicion of the disease the first thing to do is the test of TOTAL igE that does not need to be requested by a physician and is not expensive
• Moisten the skin several times a day with specific creams for the skin ultra dry.
• Avoid baths time-consuming. If the skin is very hard to avoid the bathroom, do only a free with swaddling clothes
• Look for more from a doctor (if necessary) to make the diagnosis of preference immunologist, Although there is a dermatologist to take care even not being his specialty
• See if the symptoms that you have fits in with a primary immunodeficiency, fitting, lightweight to your doctor and ask for additional tests.
• Contact with groups of people who suffer from the same illness and exchange information
• Look for exercise (if you can)
• Help your doctor with additional information.
Posted May 8, 2017 by Gina Harla 2515
