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Which advice would you give to someone who has just been diagnosed with Idiopathic Hypersomnia?
Advice for the newly diagnosed with Idiopathic Hypersomnia, written by people who have lived it. What they wish they had known on day one.
Find out as much as you can about IH from research and talk to others who have it. Figure out the best plan for treatment based on your needs from your research and commication. Try to explain to your family what is going on slowly so they understand and don't think you are lazy or making it up
Posted Jun 6, 2017 by Candice 2150
I would advise them to read up on the condition as much as possible and familiarise yourself with the condition. I would also strongly advise them to get a therapist and good neurologist.
Posted Jun 7, 2017 by Sarah 2050
Seek peace in the diagnosis. Treatments may not help, but at least you know you aren't lazy or crazy!
Posted Oct 1, 2017 by Sarah 400
Knowledge is power. Join Facebook group. Don't be alone . I've had it 32 yrs and I'm doing ok still. Find Buddhism.
Posted Oct 16, 2018 by Kathy 1600
