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What are the best treatments for Incontinentia Pigmenti?

Treatments for Incontinentia Pigmenti: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.

Incontinentia Pigmenti treatments
3 answers
No hay tratamiento lo q es aconsejable cada 3 meses ir controlando el fondo de ojo y en caso de convulsiones o algun retraso realizar una resonancia cerebral

Posted Feb 27, 2017 by Iker 500
For my skin, the best treatment was betnovate, which is a steroid cream. Although this is supposedly bad, this was the only thing that would help cure my skin problems. Trust me, I’ve tried everything! As I was also born without any eyelashes or eyebrows I had them tattooed when I was 15. This helped boost my confidence massively. For my teeth, I am lucky that my dad is a dentist and has managed to give me the perfect smile I always dreamed of.

Posted Oct 3, 2017 by Dulcieb95 300
Reassurance. Physiotherapy

Posted Oct 6, 2017 by Faizal Zuhri 300

Incontinentia Pigmenti treatments

Incontinentia Pigmenti life expectancy

What is the life expectancy of someone with Incontinentia Pigmenti?

2 answers
Celebrities with Incontinentia Pigmenti

Celebrities with Incontinentia Pigmenti

1 answer
Is Incontinentia Pigmenti hereditary?

Is Incontinentia Pigmenti hereditary?

2 answers
Is Incontinentia Pigmenti contagious?

Is Incontinentia Pigmenti contagious?

2 answers
ICD9 and ICD10 codes of Incontinentia Pigmenti

ICD10 code of Incontinentia Pigmenti and ICD9 code

1 answer
Natural treatment of Incontinentia Pigmenti

Is there any natural treatment for Incontinentia Pigmenti?

2 answers
Living with Incontinentia Pigmenti

Living with Incontinentia Pigmenti. How to live with Incontinentia Pigmenti...

1 answer
Incontinentia Pigmenti diet

Incontinentia Pigmenti diet. Is there a diet which improves the quality of ...

2 answers

World map of Incontinentia Pigmenti

Find people with Incontinentia Pigmenti through the map. Connect with them and share experiences. Join the Incontinentia Pigmenti community.

Stories of Incontinentia Pigmenti

INCONTINENTIA PIGMENTI STORIES
Incontinentia Pigmenti stories
My daughter Avery was born with only 10% of her blood due to a placental abruption. They put her in a cooling bed to stop the brain damage and that is when a rash appeared on her body. They took a biopsy and sure enough she tested positive for IP. Sh...
Incontinentia Pigmenti stories
I am middle affected by IP, but one of my daughters -Amma(2 years old) is severe affected by this genetic condition. She has neurological issues, antenatal strokes and a blood cerebral stroke on the 2 nd day of life. Now she is CP , quad tetrapare...
Incontinentia Pigmenti stories
My daughter Emilia was born 5/7/22 and was born with a red rash that was initially diagnosed as erythema toxicum. The rash started to go away until 5/18 when I noticed the a yellow crusty rash forming on her arm. The pediatrician sent us to the child...

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