Story about Interstitial Cystitis .

Rough start to getting diagnosed

Jun 23, 2026


Went to Emergency room thinking I had a UTI. When this became clear, they checked my uterus, and ran CT SCAN. Only found divuticulitus, thought it was in flamed, sent me home with antibiotics. Pain never went away, ended up with million dollar work over to rule out digestive, pancreas, gall bladder, and finally had bladder scope, found 3 lechions. Got scheduled for bladder biobsy, which found 2 lechions had exploded. Nothin taken from bladder, more antibiotics. Not till going to Mayo was I finally diagnosed with IC. Took Me another 3 months yo find Dr who could treat me and another 3 to find primary to help with all issues that go with IC. Pelvic floor dysfunction, IBS, and know possibly Fibromyalgia.

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