Short answer · Medically reviewed summary · Last updated: 2026-04-07

Intracranial Hypertension, also known as Pseudotumor Cerebri, is not a contagious disease and cannot be spread from person to person through touch, air, or bodily fluids. It is a chronic neurological condition caused by increased pressure of the cerebrospinal fluid within the skull, and there is absolutely no risk to those living with or caring for individuals affected by this condition. Is Intracranial Hypertension contagious? It is important to state clearly that Intracranial Hypertension is not an infectious disease.

13 people with Intracranial Hypertension have shared their first-person experience on this question at DiseaseMaps.

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Is Intracranial Hypertension contagious?

Is Intracranial Hypertension contagious? Clear, medically reviewed answer on transmission, with sources.

Is Intracranial Hypertension contagious?

Intracranial Hypertension, also known as Pseudotumor Cerebri, is not a contagious disease and cannot be spread from person to person through touch, air, or bodily fluids. It is a chronic neurological condition caused by increased pressure of the cerebrospinal fluid within the skull, and there is absolutely no risk to those living with or caring for individuals affected by this condition.



Is Intracranial Hypertension contagious?


It is important to state clearly that Intracranial Hypertension is not an infectious disease. It is not caused by bacteria, viruses, or any other transmissible pathogen. Because it is a physiological condition involving the pressure dynamics of the brain and spine, you cannot "catch" Intracranial Hypertension from someone else. Living in the same household, sharing meals, or providing physical care to a patient with Intracranial Hypertension poses zero risk of transmission to family members, friends, or coworkers.



What causes Intracranial Hypertension?


Intracranial Hypertension occurs when the pressure of the cerebrospinal fluid (CSF) that surrounds the brain and spinal cord becomes too high. While the exact cause is often idiopathic (meaning the cause is unknown), medical research points to several underlying factors:



  • Impaired CSF absorption: The body may fail to drain cerebrospinal fluid effectively back into the bloodstream.

  • Venous sinus stenosis: Narrowing of the veins in the brain can impede proper fluid drainage, contributing to the symptoms of Intracranial Hypertension.

  • Medication side effects: Certain medications, such as tetracycline antibiotics, excessive Vitamin A (retinoids), or growth hormones, have been linked to the development of the condition.

  • Hormonal and Metabolic factors: There is a documented association between Intracranial Hypertension and various endocrine or metabolic imbalances.



Why is there confusion regarding the nature of this disease?


Patients with Intracranial Hypertension sometimes face social stigma because the symptoms—such as nausea, dizziness, and chronic fatigue—can be misinterpreted by others as signs of a contagious illness or a "stomach bug." Furthermore, because the condition often requires invasive procedures like lumbar punctures or shunt surgeries, onlookers may mistakenly assume the patient is suffering from an acute infection. It is vital to recognize that Intracranial Hypertension is a complex, chronic neurological disorder, not a transient infection.



Are there environmental triggers for Intracranial Hypertension?


While Intracranial Hypertension is not triggered by environmental contagions, certain factors can exacerbate symptoms. Managing these triggers is a key part of the care plan for the 2,580 members of the DiseaseMaps.org community living with this diagnosis. These factors include significant fluctuations in body weight, high levels of stress, and the use of specific supplements or medications that may influence fluid retention or intracranial pressure.



Next steps



  • Consult a neurologist or neuro-ophthalmologist to monitor your intracranial pressure and vision health.

  • Maintain a detailed symptom diary to track how diet, medication, and lifestyle changes affect your Intracranial Hypertension.

  • Join the DiseaseMaps.org community to connect with others who understand the day-to-day challenges of living with this condition.

  • Educate your friends and family members by sharing reliable information to dispel myths about the disease's "contagious" nature.



Medical disclaimer: This content is for informational purposes only and does not constitute professional medical advice, diagnosis, or treatment; always seek the advice of your physician with any questions regarding a medical condition.



References



  • NIH Genetic and Rare Diseases Information Center (GARD): Pseudotumor Cerebri.

  • Orphanet: Idiopathic Intracranial Hypertension.

  • PubMed/National Library of Medicine: Clinical reviews on intracranial pressure dynamics.

  • DiseaseMaps.org: Patient-reported data and community insights for Intracranial Hypertension.

Author: DiseaseMaps Editorial Team
Reviewed against authoritative medical sources (NIH GARD, Orphanet, OMIM)
Last updated: 2026-04-07
Medical disclaimer: This information does not substitute professional medical advice. Always consult your doctor before making health decisions.
Source: DiseaseMaps.org
14 answers
No, it is not contagious

Posted May 29, 2017 by Pooja A 600
Idiopathic intracranial hypertension is not contagious.

Posted Aug 12, 2017 by Christy 850
No.

Posted Aug 13, 2017 by LaurynPatterson 1750
No it is not at all

Posted Aug 15, 2017 by Mommy2Five 1500
No it is not contagious

Posted Aug 15, 2017 by Lynne 1600
No it is not contagious

Posted Aug 18, 2017 by Unique cheatom 2120
I'm almost sure you can not catch a headache and vision loss but no it is not contagious

Posted Oct 18, 2017 by Sara 2000
absolutely not, you cant catch it off someone

Posted Oct 19, 2017 by Julie 2000
no

Posted Oct 28, 2017 by lisa 3365
Absolutely not. It's not that kind of illness. Meaning not transmittable.

Posted Oct 29, 2017 by So 2000
Intracranial hypertension is not contagious.

Posted Feb 18, 2018 by Kelly 2560
No there is no evidence that it’s contagious.

Posted Jul 12, 2018 by Michelle 2050
Translated from spanish Improve translation
There is not a contagious disease.

Posted Jun 7, 2017 by Lo 2000

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In July of 2005, I had what I thought was the mother of all Migraines, which I have suffered from since I was 4 years old. I actaully lost my visoin for 2 days! That triggered an Emergency Room visit, where they directed me to a Neurologist for furth...
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_I start having haedache since I was 15 years old but I never pay any attention to it untill I was 25 I was living un kentucky And I when to México for vacations I gain 25 pounds so when I come back to kentucky my headache were worse And I start los...
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Hi, I'm Shellie! I am a former RN, Director of Nursing and Legal Nurse Consultant. In all my 25+ years of nursing, I have never heard of Intracranial hypertension until I was dignosed. Like you, I have to research this little known condition. I am f...
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Hi I am Pam, I am from Wales in the UK.  Back in 1984 I gave birth to my first child, a 9lb6oz son called James.  After about 3 months I started to get headaches, I originally thought they were just due to tiredness and being a new mother, but i wa...
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Diagnosed at 12 at an AVERAGE weight, was not overweight. Allergic to diamox, topamax. Also diagnosed with migraines Now doctors arent even sure I have IIH It was due to an injury (we're assuming from trauma at young age) 3 spinal taps, none of ...

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Intracranial Hypertension forum

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hi everyone. Is anyone here from Wales suffering with intercranial hypertension? 
Intracranial Hypertension forum
Just wanting to know others with IIH.  I had stent surgery in July 2016 to prevent blindness.  
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Has anyone else with this condition lost the ability to smell?  I can only smell really really strong smells.   

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