19 people with Isaac syndrome have joined the DiseaseMaps community map. They have shared 266 first-person answers and 3 stories about living with the condition.
2 people with Isaac syndrome have taken the SF36 survey. Mean of Isaac syndrome is 1518 points (42 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey