Story about Kallmann Syndrome , Kallmann Syndrome.

Very late diagnosis.

Mar 11, 2017

By: Paul


I've spent most of my life not knowing I actually had a medical condition. I just thought I wasn't very hairy, or muscular, and struggled with my weight. I knew In my 30s I couldn't have children but just thought itvwas "one of those things". Looking back now, I realise I have had periods of depression. It was only after a camping trip when I felt exceptionally cold I thought I may have had a thyroid isdue so had it checked. Indeed my thyroxine level was low so I started taking levothyroxine. As it is a hypopituitary condition I asked my gp to have my testosterone level to be checked at the same time as my follow up test for T3/TSH. Sure enough my Test level was almost zero and so I was, at 56 years old, referred to an endo who diagnosed CHH ( same as KS without the anosmia). I'm now 3 months into using testosterone gel, still increasing dosage at a slow rate and only just starting to observe minor physical changes. However my mood is improved and I'm happy to at last be receiving treatment. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Do I have Kallmann Syndrome?

How do I know if I have Kallmann Syndrome?

Kallmann Syndrome causes

Which are the causes of Kallmann Syndrome?

Kallmann Syndrome symptoms

Which are the symptoms of Kallmann Syndrome?

Kallmann Syndrome treatments

What are the best treatments for Kallmann Syndrome?

Kallmann Syndrome and depression

Kallmann Syndrome and depression

Is Kallmann Syndrome contagious?

Is Kallmann Syndrome contagious?

Is Kallmann Syndrome hereditary?

Is Kallmann Syndrome hereditary?

Natural treatment of Kallmann Syndrome

Is there any natural treatment for Kallmann Syndrome?