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What is the prevalence of Kallmann Syndrome?

Prevalence of Kallmann Syndrome: how many people are affected worldwide, differences by sex and region, with sources.

Prevalence of Kallmann Syndrome
3 answers
The condition has a low prevalence, estimated as being between 1 in 4,000 and 1 in 10,000 for male HH cases overall and 1 in 50,000 for Kallmann syndrome. It is three to five times more common in males than females. Though whether this is a true sex imbalance or a reflection on how difficult KS / HH is to diagnose correctly, especially in females, has yet to be fully established. Finnish population at 1 in 48,000, with a sex distinction of 1 in 30,000 for males and 1 in 125,000 for females.

Posted Jun 11, 2017 by Remo 2050
Hypogonadotropic hypogonadism is estimated to affect between 1 in 4,000 and 1 in 10,000 males, of which about a half are Kallmann syndrome cases.

A recent study in Finland put the incidence at 1 in 48,000 people overall, with 1 in 30,000 for males and 1 in 125,000 for females.

The true figure is unknown but is probably under diagnosed in females.

Posted Nov 30, 2017 by Neil Smith 4395
Estimates vary, but it is roughly 1 in 100,000 men and even more rare for women.

Posted Dec 5, 2017 by Aaron Davis 4150

Prevalence of Kallmann Syndrome

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KALLMANN SYNDROME STORIES
Kallmann Syndrome stories
What can you say my story of how I was born as an http://en.wikipedia.org/wiki/Intersex/DSD person and living my life is as unique as the next person. I’m no different from anyone else, other than being born with an Intersex/ DSD (http://en.wikipe...
Kallmann Syndrome stories
My name is Ivan. I'm a clinical psychologist. I'm 40 years old and I have Kallman's syndrome. Unfortunately, it was diagnosed only a couple of years ago (in 2009).  My first 36 years of life without the diagnosis were not so bad, however, I develo...
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Short version to start with..... Born in 1969. Went to Bradford University to study Biomedical Sciences Was dismissed as a "late bloomer" or "late starter" every time I went to the doctor throughout my teenage years. Diagnosed at 23 at Royal ...
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When I was little and found out my Syndrome was a confused time, how doctors told me what my life will be and how could I live when been a grown up person. Now that I am 40 and knowing people that been there like me and talk about our story I can say...
Kallmann Syndrome stories
I have a Portuguese blog where I talked about my syndrome and my desire to become mom.  Is called https://cantinhodossmurfs.wordpress.com

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Kallmann Syndrome forum

KALLMANN SYNDROME FORUM
Kallmann Syndrome forum
We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for such a study.  This study is being run through the Pennsylvania State University De...

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