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Is it easy to find a partner and/or maintain relationship when you have Kallmann Syndrome?

Relationships and Kallmann Syndrome: real patients share how diagnosis affected dating and partnership.

Couple and Kallmann Syndrome
3 answers
No it is very hard, especially because of the lack of self esteem, being shy, bad self image generated by delated puberty.

Posted Jun 11, 2017 by Remo 2050
It can be but it very much depends on personal circumstances.

Kallmann syndrome can be very severe with no pubertal development at all, leaving people physically very underdeveloped. This alongside the low hormone levels can make physical relationships difficult for both men and women with Kallmann syndrome. The level of physical development can vary a lot between patients so everybody's experience will be slightly different.

Early treatment and diagnosis can help but a lot of patients do have problems with their self image. This can be overcome once they meet the right partner. Physical relationships can be difficult to start but once the initial hesitation is overcome most patients with Kallmann syndrome can have an active sexual life.

Having an hormonal condition can affect emotions and it can be difficult for the partner to understand the feelings and emotions experienced by somebody with Kallmann syndrome but these can be overcome over time.

I think it is important to focus on the whole person, the whole personality. Partners will be attracted to the whole person and personality, regardless of the medical condition. Taking that first step to get physically involved with a partner can be very daunting for some patients but it is worth taking the risk. Support and advice from fellow patients can help.

Posted Nov 30, 2017 by Neil Smith 4395
Without treatment, sexual activity is limited. With treatment, sexual activity is normal, though many patients are insecure about this. Fertility is an issue and should be discussed with potential mates.

Posted Dec 1, 2017 by Aaron Davis 4150

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Stories of Kallmann Syndrome

KALLMANN SYNDROME STORIES
Kallmann Syndrome stories
What can you say my story of how I was born as an http://en.wikipedia.org/wiki/Intersex/DSD person and living my life is as unique as the next person. I’m no different from anyone else, other than being born with an Intersex/ DSD (http://en.wikipe...
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My name is Ivan. I'm a clinical psychologist. I'm 40 years old and I have Kallman's syndrome. Unfortunately, it was diagnosed only a couple of years ago (in 2009).  My first 36 years of life without the diagnosis were not so bad, however, I develo...
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Short version to start with..... Born in 1969. Went to Bradford University to study Biomedical Sciences Was dismissed as a "late bloomer" or "late starter" every time I went to the doctor throughout my teenage years. Diagnosed at 23 at Royal ...
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I have a Portuguese blog where I talked about my syndrome and my desire to become mom.  Is called https://cantinhodossmurfs.wordpress.com

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We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for such a study.  This study is being run through the Pennsylvania State University De...

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