15 people with KBG Syndrome have joined the DiseaseMaps community map. They have shared 74 first-person answers and 1 stories about living with the condition.
2 people with KBG Syndrome have taken the SF36 survey. Mean of KBG Syndrome is 2248 points (62 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey